Doing my bit

What can I do?  What CAN I DO?  I need to do something – to contribute something to this new world of autism that we’ve found ourselves in…

When we first got our diagnosis of autism, we were lost.  There were no maps.  No signposts.  Nothing.  Just an uber ‘helpful’ doctor telling me to “join the National Autistic Society”.  She then wished me “good luck”, with a sympathetic sort of head-tilt that I’ve now come to recognise only too well.

Autism awareness

So then what?  Well, me being me, I got on Google.  And joining forums.  And buying books.  And basically turning into a one woman ASD info junkie!  But it wasn’t easy – there were (and still are) so many things to think about and look into; therapies; education; understanding; explaining; ‘treatments’; respite; benefits; the list goes on and on.  But, and I think this is the most difficult part of the process, I had (and still have) no way of knowing what the future held – not just for the Wee Man, but for me as well.  Could I cope with this?  Could I ever feel like I was prepared enough to help these little people (there may be more than one kiddo with ASD) as much as they really need me to?  And, how the flip will we cope as a family??  Well, I can now say that yes, I can cope.  And yes, I can give them everything they need.  And, as a family, we are stronger than ever.

It’s not always easy, in fact it’s very hard a lot of the time, but WE CAN do this.

Whether you have a child with autism or if you care for one, or even if you just want to learn more – you can help make a difference just by trying to understand that the world they experience is different to yours.  That’s all…

 

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